Thanks to everyone who's helped me on my problem. I'm still feeling pretty low, but at least I don't feel like I'm at the bottom of a dark hole any more - and it's thanks to you wonderful people who, every day, show how much you care! Thank you.
Ann, you said:
Guilt trip him! be absolutely shameless and enlist friends and family
members to assist you in this and guilt trip him!
I'm working on this. Dennis' family all live far away - 3 overseas, and only one in the South Island. This is not to say that most of them really care about what's happening down here. Maybe I'm being rather cynical when I say this, but I think they are quite happy for me to shoulder the load for them. Maybe I should guilt-trip them, not Dennis!!
I told Dennis the other evening that I need time out, and that he will need to go into Plymouth Court for a few days - you would have thought I'd told him he was going to have to climb Mount Everest on his own! So then I said that either he went in there for a few days every six months, or else he would be going to stay there permanently. Maybe he can't speak much, but I was left in no doubt about how he felt!
Kate, you said:
Involve him as much as possible in planning your "battery re-charging" getaway by looking at maps and brochures together and talk about what kind of "keepsakes" or souveniers he would like you to bring home for him.
Unfortunately, any battery-charging will have to be done at home, because our finances don't stretch to me travelling away. I'll just have to win the lottery - oh, the dreams of this happening!
Going to a facility might be a vacation for him also. He'll have different
walls and people around him. Different food to eat, etc. It's for a certain
period of time after which he (and you) will be at home.
He doesn't like going to Plymouth Court, for some reason. The people there are always very friendly, etc, and I know he gets good care. I think it's just that he doesn't have me running around doing things for him all the time.
Which is really part of the problem, I suppose. Dennis can be very demanding at times, and I have learned (?been trained?) that the easiest way of dealing with this - i.e. to prevent tantrums - is to respond quickly. I suppose I do many things for him which he could do himself, but this situation has developed gradually over the last 3 years or so. It's not until you stop and step back for the wider viewpoint that you realise just what has been happening.
Wouldn't know how
to assert myself with Dennis, but you've received some good advice from
others. Tell him you are going because of "doctor's orders" and that it's
mandatory and not negotiable??? Hard to do, isn't it?
OH YES!!!! I'm working on it though. Just little hints here and there every day. At this stage I'm planning for a few days off near the end of January - it's a bit complicated, but that's about the earliest time I can do it because of other things that are happening.
whitegoose, you said:
the families
should be told in your Christmas News letter that because of this
you are unable to send cards and gifts. Make a resolve to do this
next year in plenty of time for them to send you "a little extra"
to help out. It is my view that most family members haven't a clue
about how a disabling illness affects family income and they need
to be told. If they are really caring, they will understand and
would be glad to contribute a little if they knew.
Dennis' children have know for some time that we are unable to buy Christmas gifts. But as for giving us money - HUH! Only one has ever offered, and even then she didn't follow through. They know that we are on a pension, and seem to expect that we are ok financially. Because his family don't see the day-to-day care required, they really haven't a clue. Though I must admit that on their rare visits home (as in every 3 years or so) they will help now and again.
I suppose I'd better put in a bit of background here for the newer people in the group. This is Dennis' 3rd marriage(he's 66, I'm 49), my second. He has 7 children, 9 grand's and 5 great's. I have 2 children and one grand. His children age between 46 and 25, the oldest 3 live in Auckland, then Yukon; London England; Nelson, NZ, and Brisbane, Australia.
Cheryl, you said:
One thing I am learning is that if you need help it is OK to ask for help.
I think that's part of the problem - I seem to have been very successful at projecting this image of a strong, coping person, so now everyone just assumes that I'm fine and doesn't even ask anymore.
Time to give them all a bit of a wake-up call I think! As I said before, use the guilt-trip on them, not Dennis :))
SO YOU ARE HEREWITH ORDERED TO FOLLOW DOCTORS ADVICE.
Dennis will not be happy at first, but will be the more happier having you
back with batteries freshly charged.
Reinhard, thank you also for your comments. I'm glad you pointed out that this is really a universal problem, and not unique to me/us. Kind of puts it all into perspective, doesn't it!
Anyway, I've rattled on for long enough. Once again, my grateful thanks to all of you for being there, and for caring!
Sunshine,
Gwenda